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  1. Guided Questions Tool – ACHD Edition

    Ask these important questions to your care team. ACHD En Español / Pediatric versions of this resource available. QUESTIONS TO ASK YOUR CARDIAC TEAM Congenital Heart Disease (CHD) is a lifelong condition which requires lifelong care in an Adult Congenital Heart Disease (ACHD) Program. Only about 10% of Adults with CHD are seen in ACHD…

  2. Advocacy for Kids: Virtual Conference 2021

    Conquering CHD’s annual advocacy conference in Washington, D.C. is virtual in 2021. Junior advocates can access recorded content, as well as printable materials, in lieu of attending the full virtual conference. Advocates ages 13+ are encouraged to attend the full virtual conference with a parent/guardian.

  3. Guía Para el Cuidado Futuro de su Hijo

    La Afección cardíaca congénita (Congenital Heart Disease, CHD) es de por vida y los pacientes que nacen con CHD necesitan cuidados durante toda su vida basados en las indicaciones recomendadas. Sin embargo, alrededor del 50 % de los pacientes dejan de recibir cuidados después de los 13 años, y más del 60 % después de los 18….

  4. The Foligno Family

    “We don’t look at the world with rose-colored glasses, but we are optimists through and through. We believe in turning obstacles into opportunity, that forward is a mindset, and that there are tools to help us at any place you find yourself on life’s journey.”

  5. Top 10 Things to Remember about CHD as an Adult

    When you’re living with CHD, there is a lot to remember about managing your care. Our Top 10 List of Things to Remember makes a handy cheat sheet to help keep you on track! This resource is also available as a printable poster and a convenient magnet can be purchased at our Shop for Swag…

  6. Connections: CHD and Down syndrome

    The most common birth defect and the most common genetic syndrome have a strong connection.

  7. What is Congenital Heart Disease?

    Congenital heart disease is a term for a variety of birth defects that affect the normal way the heart works. Congenital means the condition is present at birth. Known as the most common birth defect, 1 out of every 100 babies born in the United States suffer from congenital heart disease. But What is Congenital…

  8. What Does a CHD Diagnosis Mean?

    If you have been diagnosed with congenital heart disease, it is not the end of your life. Typically a CHD Diagnosis means that your heart has one or more problems with its structure. This defect will have been something you were born with, which is why it is called congenital (meaning born with the defect)….

  9. 5 Facts You Didn’t Know About CHD

    Congenital heart defects are not a commonly talked about subject. If you or your child suffers from CHD, then you may have a lot of questions. It can be a scary diagnosis at first, but after you learn more about it, you will realize that it is extremely common and manageable. Following are five CHD…

  10. How to Find CHD Support Groups Near Me

    For parents who have children diagnosed with congenital heart disease, it can feel devastating. Although CHD is a serious disease, it is manageable. This means that after a diagnosis, you have a lot of decisions to make and responsibilities to deal with. Having a child with CHD means that you will need to deal with…

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