Blog
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Advocacy Conference 2021 Recap
Conquering CHD held its annual Advocacy Conference from March 1-2, 2021. Check out the meeting summary, follow-up reminders for advocates, and video messages from CHD Champions on Capitol Hill.
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Where Can I Find More Info on CHD?
Congenital heart disease is one of the most common birth defects in the U.S. One in every hundred people is born with CHD. There are even more adults living with congenital heart disease than infants. An estimated 1.5 million adults suffer from a heart defect related to CHD. However, there is limited knowledge of a…
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Latest News in Congenital Heart Disease Research
A congenital disease indicates that the condition is present from the time of birth. Therefore, a person with congenital heart disease suffers from a heart defect most, if not all, of their life. Heart defects can range from coarctation of the aorta and pulmonary valve stenosis to septal defects and underdevelopment. There are over 2…
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Feeling Out of Place as an Adult with Congenital Heart Disease
With the ever-growing adult CHD population, the question of where and how to treat these patients looms large overhead. For now, ACHD patients have to muddle through a system not truly designed for their needs. No one wants to be in the hospital. No one wants to think of one as home. Unfortunately, for many…
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Take Action: Share your #CHDVoice with Legislators
Couldn’t attend this year’s Virtual Advocacy Conference? No problem! Read on for info on using your #CHDVoice from home!
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Meeting on Health Disparities in Congenital Heart Disease: Listen. Learn. Act.
Conquering CHD hosted the Meeting on Health Disparities in Congenital Heart Disease, as part of their intentional efforts to advocate for all impacted by CHD.
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Las 10 Cosas Principales para Recordar Sobre la CHD Como Adulto
Sabemos que hay muchas cosas con las que hacer malabares como adulto que vive con CHD. Puede ser difícil organizar todo por lo que creamos esta práctica hoja de trucos con una lista de las 10 cosas más importantes para recordar. El póster imprimible de este recurso disponible aqui 1. Su cardiopatía congénita requiere cuidados…
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Changes Coming to U.S. News Rankings
Conquering CHD advocacy efforts affected change at U.S. News and World Report. Read on for changes coming to their Best Children’s Hospitals Rankings program.
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Camila
Camila nació el 5 de octubre del 2018. Seis días antes de que naciera, fue diagnosticada con estenosis de la válvula pulmonar y comunicación interauricular. La noticia nos tomó a todos por sorpresa. En ese momento estábamos viviendo en California en el Área de la Bahía y cuando Camila nació fue inmediatamente transferida al hospital de niños Benioff en…
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Guided Questions Tool – ACHD Edition
Ask these important questions to your care team. ACHD En Español / Pediatric versions of this resource available. QUESTIONS TO ASK YOUR CARDIAC TEAM Congenital Heart Disease (CHD) is a lifelong condition which requires lifelong care in an Adult Congenital Heart Disease (ACHD) Program. Only about 10% of Adults with CHD are seen in ACHD…