Blog
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Supporting Heart Siblings at Home – Part One
It may be difficult to balance the needs of your child with CHD and those of your heart healthy child. Siblings at home may feel left out or confused, and we may not always know how to best support them. In this two-part blog series, Nicole Johnson, a Child Life Specialist, offers insight into how…
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CHD BEAT: A Passion for Education and to Help Others – Dr. Keila Lopez
We often share stories and features from patients and parents of children with CHD, but there is more to the CHD community. In this edition of our CHD Beat highlight series, we introduce you to Dr. Keila Lopez, a CHD physician in Texas, who shares how she got started in medicine, how she connects to…
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This Just In! A New Highlight Series Is Here!
Collaboration. Hope. Dedication. Together, we are Conquering CHD! It’s no secret that the CHD community is full of highly-skilled, dedicated individuals who care deeply for patients and their families. While patients and families are no strangers to these incredible care team members, we sometimes don’t get to see them “behind the scenes,” learn about what…
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Return to Me & Accurate Representation of CHD in Entertainment
There’s always a bit of a thrill that comes with finding characters with CHD in a movie or a book. It’s an opportunity to our stories on screen, to know, somewhere in the world, thousands of people are reading about CHD. Some get it right, some are a bit off, but every effort to include…
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Action Alert: Remind Your Senator to Fund CHD Research
Act Now! Encourage your Senator to support CHD Research.A quick email could make all the difference. Senator Durbin is sending around a letter to all the Senators asking for support for full funding of the Congenital Heart Futures Reauthorization Act in the FY2023 Budget. Congress has been given permission to fund $10M each year for…
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Stroke Awareness Month – Warning Signs and Patient Stories
May is stroke Awareness Month. Revisit the warning signs of stroke and hear from patients who have survived and thrived after suffering strokes in this Blog Recap reboot. “We can only know how strong we are when we strive and thrive beyond the challenges we face.” Kemi Sogunle
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To Heart Moms This Mother’s Day, From a Grateful ACHDer
I don’t know what it feels like to be a mother. I don’t know what it feels like to learn that my child has a CHD or have thoughts race through my mind as I wait to hear that she’s made it out of surgery. But I have felt a mother’s love. I have felt…
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The Gift of Life: It’s National Pediatric Transplant Week
For some with congenital heart disease, a life-saving heart transplant is an inevitable part of treatment. This week is National Pediatric Transplant Week – a chance to honor and celebrate the gift of life provided through pediatric organ donation and transplant. Each year National Pediatric Transplant Week takes place during the last week of National…
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Conquering CHD Now on Tiltify
With the increasing popularity of streaming online, content creators and gamers have raised thousands of dollars for non-profits all around the world. While some streamers use PayPal or Twitch as a means to gather the funds, third-party apps like Tiltify add a layer of security and better integration for streamers and their audiences. We are…
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Telling Your Story
Printable PDF “Stories are how we learn best. We absorb numbers and facts and details, but we keep them all glued into our heads with stories.” – Chris Brogan Your story is the most important part of advocacy! While no one can write your story foryou, we would like to provide you with a few…