Blog
-
Help for the Helpers
Thank you to our friends at Cardiac Neurodevelopmental Outcome Collaborative for providing resources on coping with stress and worry during the COVID-19 pandemic. View this resource for healthcare professionals HERE: Healthy Coping and Stress Management Resources for Frontline Healthcare Professionals during the COVID-19 Pandemic As the COVID-19 pandemic advances across the globe, frontline healthcare professionals…
-
Helping Children Cope with Stress and Worry during COVID-19
Thank you to our friends at Cardiac Neurodevelopmental Outcome Collaborative for providing resources on coping with stress and worry during the COVID-19 pandemic. Resources are available for youth, teens, and adults. View the full document HERE: Information for Families of Children with Congenital Heart Disease Many children and teens are feeling stressed and worried about…
-
Coping with Stress and Worry During COVID-19
Thank you to our friends at Cardiac Neurodevelopmental Outcome Collaborative for providing resources on coping with stress and worry during the COVID-19 pandemic. Resources are available for youth, teens and adults. View the full document HERE. Information for People with Congenital Heart Disease and their Families Many people are feeling stressed and worried about the…
-
Take Action: Share your #CHDVoice with your Legislators
As you read this, more than 150 fellow advocates are on Capitol Hill meeting with their Members of Congress as part of the PCHA’s 2020 Advocacy Conference. They are asking their lawmakers to fully fund $10M for CHD research and data collection at the CDC, help patients and families get the info they deserve and…
-
Hospital Rankings – A Letter to U.S. News and World Report
In response to conversations at our 2019 Summit on Transparency and Public Reporting last fall, CCHD submitted a letter to US News Editorial Staff, expressing the concerns of the patients and families we serve regarding the challenges of ranking hospitals. We are pleased that we were able to have a constructive follow-up conversation with them…
-
Check Out the New ACHD Info Kits
As we continue our commitment to the lifespan of patients and families affected by CHD, CCHD has launched our New ACHD Info Kit!! This kit, created especially for Teen and Adult Patients, includes several new resources designed to help patients transitioning to adult care as well as adults already there, into a handy padfolio. Check…
-
Sweet Girl Paislee
Paislee Kate was prenatally diagnosed with Hypoplastic Left Heart Syndrome. At 33 weeks, doctors considered her in “imminent danger” so, in February 2018, she was delivered by emergency C-section. After she was born, more complications arose. The morning after she was born, she was moved to another hospital 45 minutes away. Scott and his wife,…
-
Conquering CHD Media Relations
Inquiries from reporters and members of the media, please email info@conqueringchd.org or call (608) 370-3739. Key CHD Facts Congenital Heart Disease (CHD) consists of problems with the heart’s structure that are present at birth with potential lifelong implications. CHD is the most common birth defect. 1 in 100 babies are born with CHD. Nearly 40,000…
-
Bella
En julio de 2017, nació nuestra heroína del corazón, Bella. No sabíamos sobre la cardiopatía congénita de Bella (CHD): defecto septal ventricular, defecto del tabique auricular, estenosis pulmonar y miocardiopatía hipertrófica, hasta que nació a las 39 semanas y 6 días. A las pocas horas de nacer, Bella tuvo dificultades para respirar y sus niveles…
-
Words to Know (Heart Glossary)
Listen Print A B C E H I L M P R S T V A aerobic (say: air-OH-bik) activity: Aerobic activity is any kind of movement that makes your muscles use oxygen. It gets your heart pumping, too. Swimming, dancing, and soccer are all types of aerobic activity, so hit that pool, dance floor, or soccer field…