Blog
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Carol’s Transplant Story – Donate Life Month
Growing up with congenital heart defects, I had multiple surgeries and procedures to help give me the best quality of life possible. Despite this, by the time I was in my early 40’s, I was having worsening swelling, shortness of breath, and fatigue, which weren’t improving, even with increasing my medications. My ACHD doctor felt it…
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Volunteers Change Lives
During this Volunteer Appreciation Week, Conquering CHD wants to thank the many volunteers that make accomplishing our mission possible.
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Shared Decision Making in Telemedicine During COVID-19
CHD clinicians from around the country explain how their centers are using Conquering CHD’s Guided Questions Tools during telemedicine appointments with patients and families.
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Help for the Helpers
Thank you to our friends at Cardiac Neurodevelopmental Outcome Collaborative for providing resources on coping with stress and worry during the COVID-19 pandemic. View this resource for healthcare professionals HERE: Healthy Coping and Stress Management Resources for Frontline Healthcare Professionals during the COVID-19 Pandemic As the COVID-19 pandemic advances across the globe, frontline healthcare professionals…
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Helping Children Cope with Stress and Worry during COVID-19
Thank you to our friends at Cardiac Neurodevelopmental Outcome Collaborative for providing resources on coping with stress and worry during the COVID-19 pandemic. Resources are available for youth, teens, and adults. View the full document HERE: Information for Families of Children with Congenital Heart Disease Many children and teens are feeling stressed and worried about…
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Coping with Stress and Worry During COVID-19
Thank you to our friends at Cardiac Neurodevelopmental Outcome Collaborative for providing resources on coping with stress and worry during the COVID-19 pandemic. Resources are available for youth, teens and adults. View the full document HERE. Information for People with Congenital Heart Disease and their Families Many people are feeling stressed and worried about the…
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Take Action: Share your #CHDVoice with your Legislators
As you read this, more than 150 fellow advocates are on Capitol Hill meeting with their Members of Congress as part of the PCHA’s 2020 Advocacy Conference. They are asking their lawmakers to fully fund $10M for CHD research and data collection at the CDC, help patients and families get the info they deserve and…
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Hospital Rankings – A Letter to U.S. News and World Report
In response to conversations at our 2019 Summit on Transparency and Public Reporting last fall, CCHD submitted a letter to US News Editorial Staff, expressing the concerns of the patients and families we serve regarding the challenges of ranking hospitals. We are pleased that we were able to have a constructive follow-up conversation with them…
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Check Out the New ACHD Info Kits
As we continue our commitment to the lifespan of patients and families affected by CHD, CCHD has launched our New ACHD Info Kit!! This kit, created especially for Teen and Adult Patients, includes several new resources designed to help patients transitioning to adult care as well as adults already there, into a handy padfolio. Check…
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Sweet Girl Paislee
Paislee Kate was prenatally diagnosed with Hypoplastic Left Heart Syndrome. At 33 weeks, doctors considered her in “imminent danger” so, in February 2018, she was delivered by emergency C-section. After she was born, more complications arose. The morning after she was born, she was moved to another hospital 45 minutes away. Scott and his wife,…