Blog
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Transition Checklist
When you were a child with CHD you probably had someone who helped you with all sorts of things related to your heart health and its impact on your life. As you get older, it is important that you learn how to do these things by yourself. This Conquering CHD Transition Checklist can help as…
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Preventative Care is Essential During a Pandemic
Dr. Rema Merhi of Las Vegas, Nevada co-authors this post, sharing critical reminders for families of pediatric heart patients during the pandemic. While most of us are worried about COVID-19, parents of pediatric CHD patients are definitely worried. In fact, they are so worried, they are refraining from receiving essential preventative medical care during the…
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COVID-19 Vaccines & CHD: Town Hall Wrap-Up
Thank you to the patients and families who participated in our live Town Hall on January 20th, as part of our CHD Wise educational series. Read on for the summary and full video presentation.
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Guide to Your Child’s Future Care
Congenital Heart Disease (CHD) is lifelong, and patients born with CHD need lifelong care based on the recommended guidelines. However, nearly 50% of patients stop getting care after age 13, and more than 60% after age 18. It is important to know what care your child needs now and what care they will need in…
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7th Summit on Transparency and Public Reporting: Recap
The 7th Summit on Transparency and Public Reporting of Pediatric and Congenital Heart Disease Outcomes was held virtually on September 29, 2020 with nearly 200 attendees. Catch up on Conquering CHD’s historic efforts in the field, then read on for the Summit summary and full recording. Our first virtual Summit was a big success. Nearly…
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Breastfeeding & CHD
Thank you to the families who participated in our live webinar on August 25th, as part of our CHD Wise educational series. Read on for the summary and full video presentation. CHD Wise is an educational series designed for patients and families, by patients and families. It is a regular opportunity for the community to…
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School with CHD During COVID
Making decisions during a global health pandemic is not easy. Making decisions regarding the education of a CHD patient during a global health pandemic is that much more complex. As school districts, colleges, and universities around the country announce Fall 2020 education plans, patients and families are left wondering what to do. Is it safe…
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COVID-19 & CHD: Town Hall Wrap Up
Thank you to the patients and families who participated in our live Town Hall on June 16th, as part of our CHD Wise educational series. Read on for the summary and full video presentation. CHD Wise is an educational series designed for patients and families, by patients and families. It is a regular opportunity for…
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Social Distancing and CHD
Taking care of your basic needs during a time when things are not so basic. While we are still learning more about the impact of COVID-19 and CHD, there is one thing that is becoming more and more clear: Social. Distancing. Is. Hard. But more than ever, we need to take care of our mind,…
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Shared Decision Making in Telemedicine During COVID-19
CHD clinicians from around the country explain how their centers are using Conquering CHD’s Guided Questions Tools during telemedicine appointments with patients and families.
