Blog

  1. Carter Fidel Williams

    “When we first learned of our son’s congenital heart defect, we wanted to ensure that we were equipped to face this challenge. We are very grateful for CCHD, the information and support we received was invaluable as it properly prepared us for this journey.” – Shuntae Williams

  2. Trinity Higgins

    “Conquering CHD means that I have someone fighting to make sure I have access to information that I can understand and for legislation that impacts my future health.” – Trinity

  3. Joshua Morgan

    Joshua was born, at 36 weeks and 4 days, on November 25, 2017, at 7:55 pm. He was delivered early due to his dropping heart rate during my routine checkups.  Once Joshua was here, he was 3 pounds and 6.1 oz, and went straight to the Edward NICU. While he was there, it was discovered that he…

  4. Eva Burt Edinger

    “My CHD went undetected for the first year and a half of my life. After being diagnosed with an Atrial Septal Defect, I underwent open heart surgery, spent several weeks in intensive care, and was not expected to live. Now, as an adult, I have no physical restrictions and I live life to the fullest!…

  5. Sai Shah

    Sai’s journey started off with a lot of heartache, stress & worry but his life continues forward with a lot of hope, love, laughter & amazement.

  6. Barrett Lloyd

    Barrett Lloyd Chenevert was born just hours after his due date in July 2014 and his parents had no idea that anything was out of the ordinary. Their pregnancy was fairly typical with two normal ultrasounds and no other significant issues. After long and exhaustive labor that started with a two-hour car ride to the…

  7. Patrick William Walker White

    On September 20, 2018, at our twenty-week ultrasound, we found out that our beautiful baby would not only be a bouncing baby boy, but also a heart warrior. It took two days and multiple scans to finally be diagnosed with Hypoplastic Left Heart Syndrome (HLHS). Basically, he would be born with half a heart. The…

  8. 30 Days of A Grieving Mother

    Losing a child is a trial like no other. There is no one set way to grieve. There is no one way to carry on. In this special post, Heather Speakman, shares part of her family’s journey after the loss of her daughter, Madison.

  9. A Mother’s Love

    “Pregnancy is hard. Having a congenital heart defect (CHD) during pregnancy is even harder.”
    Loryn McGill is a heart warrior and mother. Loryn shares her experience with pregnancy, and discusses the challenges and beauty, of motherhood.

  10. Katherine Lange

    Gary and I went to our routine, 20 week ultrasound for the anatomy scan of our little nugget. We were excitedly watching our sonographer go through her hands, feet, arms, legs, kidneys, liver, then her heart. She finished and told us to wait in the room, while she went to talk to the doctor. We…

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