Blog
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Fixed? Not so much
We. Must. Keep. Fighting. 9 years ago, today, at 12:30pm I heard it. Standing in the hallway with his lunch tray in hands (I had missed post-surgical rounds, but that’s another story,) the world renowned Dr. Tweddle told me that Nicholas was fixed. Yep, “fixed.” A week later our amazing pediatric cardiologist told me…
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Tribute to TinMan
So unexpectedly and deeply affected by the loss of Nolan. I had not met him, or his parents, merely an onlooker to his journey. Yet, my heart is breaking for his family. For all those who have lost a child to CHD. We must keep fighting. [vimeo http://vimeo.com/83506422] From the website: On January 5, 2014,…
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JanYOUary – Celebrating YOU!!
It seems like every month has become symbolic for an issue, or two or three. Right now, the CHD community is gearing up for February Awareness month. (We’re a little bit excited over here!!) (Thanks Heart Hugs for the image!) However, I saw a promo touting this month as JanYOUary and it made me stop…
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The ONE thing for 2014
It’s a New Year. For a lot of people that means “new” things. New things to do, new things not to do. We often resolve to make these “things” happen, or not happen. But, really, it’s usually about making a change. The best way to make a lasting change is to focus on ONE THING….
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2013 Social Media Top 5 – (A little late…)
While I was writing my New Year’s post, I realized I had failed to properly acknowledge last year. Last year’s resolution was to start, and maintain a blog. Well… Like most resolutions I started strong. And then, failed miserably. But, we need to celebrate our success right? So, I scoured all social media activity this…
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Wrapping Paper
I have never been good at surprises. Keeping anything a secret is nearly impossible for me. My kids have figured it out, too. If I leave a gift wrapped present out, they quickly begin guessing and if they are even remotely close, I have to run and hide for fear of giving it away. Just…
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The power of the people (that’s you!)
The most common way people give up their power is by thinking they don’t have any. – Alice Walker Ok – here it is… I am an advocate who loathes politics. Why? I believe in the system. I really do. But, I believe it has been corrupt by power and money and infrastructure. It is…
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The Funnel Perspective
These past few weeks have seemed as though a tornado has swept through my life. We all have those moments. Sickness, deadlines, unexpected interruptions. During these times, the only things that get done, are those few things that demand the most attention – kids who need to be fed and clothed, husband who needs to…
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Awareness Week – Don’t forget the ask!
There are many fabulous CHD Awareness efforts out there. I love to see all the red on my Facebook Page. There are also many efforts happening outside of social media – in the schools, in the malls, in the hospitals. AMAZING!! We can also use this opportunity to move people to action. Raising awareness is…
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Dream Big!
Today, I offer a word of encouragement:
